Alzheimer's. It's almost impossible to believe and hard to accept. There will be countless puzzles and challenges between the beginning and and the end of the battle. My heart hurts for you because I have worked with many Alzheimer's patients. You want to provide supportive, loving care. For that reason, I want to give you some advice. Your mom will say and believe things that are different from your truth, and it will be tempting to correct her.
Resist it. Little by little, your loved one's memories will be eroded. Literally, the last memory in will be the first memory out; once that memory is gone, it's as if it never happened. To be brutally honest, trying to correct a statement that doesn't jive with your reality is cruel and chips away at their dignity.
Before you decide to quit reading, let me explain.
Here is a very common example: Mom says, "I must get dinner ready because your dad will be home from work soon.You know that your dad has passed away, and you feel as if you're helping her by reminding her that he has been gone for years.
Let me pause here and say that response is normal because we mistakenly believe that if we correct mom's misconception, then she will snap back to reality.
That's our misconception no matter how good our intentions are. Without realizing it, you have potentially done the following harm:
At the least, you have embarrassed her. You need to realize that the memory of her husband's death is gone, and every time you "remind" her, she's just received the news for the first time. How would you feel if someone told you that your husband died. Each time you tell her that dad is dead then you are putting her through the same emotions you would be feeling if you received the news for the first time.
One of the most important things you can do is to preserve her dignity. There will be a time when she forgets that her husband passed away. It's her truth. Since she has no memory of her husband's death, it's as if you are not telling the truth, even though it's your truth.
Okay, so what do you do? First you acknowledge (validate) her feelings. Just tell her that she's right; it's almost time to eat." Then you redirect her attention. "Don't worry about dinner, mom, we are going out to dinner as soon as dad gets home. Why don't you go freshen up? Do you still have that nice mauve lipstick? By the way, where did you get that lipstick - I would like to get some for myself. I really like this pink lipstick, but do you think that red would look better?"
See where I'm going with this? You are being where she is, and you have preserved her dignity while distracting her from her worry. You might even say that dad has to work late and is going to grab something at the diner. You might think your fibbing to her, but you have validated her truth and have saved her from a new loss. Chances are, she won't even mention it again.....at least that day.
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