What do you mean by an expression of brain-injury?

When I speak of cerebral palsy being an expression of brain–injury I am leading you down a path, which will hopefully allow you to see your child’s problems in a new light. Let us take this a little deeper and say that cerebral palsy is also a symptom (or set of symptoms), of brain-injury; - it is the way in which your child’s brain–injury expresses itself. There are other expressions of brain–injury, some of which are used interchangeably with cerebral palsy! I put the idea to you that cerebral palsy is a symptom of brain–injury in exactly the same way that a cough may be a symptom of a chest infection. The only reason for the existence of the term ‘cerebral palsy’ is that it, itself is a convenient marker for specific groups of sub-symptoms; - yes sub-symptoms of brain–injury! These symptoms might include spasticity, athetosis, ataxia, epilepsy, poor visual, auditory and tactile development, impaired motor function, poor language development, difficulties of socialisation, learning difficulties, or many others.

Isn’t this just ‘nit -picking’ over terminology?

No! It is important that this situation is both clarified and simplified. I have misgivings over the continued use of the term ‘cerebral palsy,’ (as I have misgivings over the continued use of many other labels such as ‘autism,’ for example). These are terms, which merely describe the symptoms. I believe it is misleading and overly-complex. It is much easier to understand the concept and the possible ramifications of brain-injury, than it is cerebral palsy. Although for the moment, I will continue to use the term ‘cerebral palsy’ interchangeably with brain-injury, because that is the ‘currency’ in which you have been dealing, I feel it is important that you should be aware of the problem with terminology and how it has encouraged the development of a focus upon symptoms as opposed to the cause.

I believe that in the case of brain-injury the medical world has fallen into the trap of merely trying to offset the worst effects of the symptoms. In some cases, as in the case of epilepsy, controlling symptoms is a necessary step, but this should be done alongside attempts to treat the cause of those symptoms, as in some cases the focus on treating symptoms can have the effect of making them worse.

Consider this example: A child of one of my clients took her son Michael, to see an orthopaedic specialist. Michael’s brain–injury was very severe, he had what the medical establishment calls severe spastic quadriplegia, (again, this is a description of symptoms; - essentially all four limbs were very stiff). Because the excessive stiffness in Michael’s left leg was beginning to distort the limb and would have dislocated it, the orthopaedist decided to place a splint on the leg, to keep it fixed in a flexed position. The splint was left on all day, every day for six months and then Michael was taken back to see the orthopaedist to see how the limb was progressing. When the orthopaedist took the splint off Michael’s leg, he was horrified to find that the rigidity in the leg was no better; in fact, it was a great deal worse! Why was this do you think? Quite simply, it was because the treatment was focused on a symptom and not the cause, which was producing that symptom.

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